Imuran

So, the doctor wants me to be on Imuran for a year.  This medication has been successful for other BOOPERS! I met a nurse the other day that worked in a Pulmonologist office and has only met 3 other people with BOOP!  So, keep your fingers crosse, say your prayers that in a year I will get rid of this stupid condition!  :)  I have a cold and ear infection, so I have to wait until I am off the antibiotics to start!   OH!!!!! AND I have pink eye!!!  FUN for the WHOLE FAMILY!!  

What is BOOP?

This definition was found on webmd.com. 

General Discussion

Bronchiolitis obliterans organizing pneumonia (BOOP) is a rare inflammatory lung disorder. Symptoms of BOOP vary greatly from case to case and may include a persistent cough, flu-like illness, and difficult breathing upon exertion (dyspnea). The term bronchiolitis obliterans refers to the accumulation of masses or plugs of fibrous, granulation tissue that forms in the small airway tubes of the lungs (bronchioles) blocking (obliterating) the flow of air. Organizing pneumonia refers to the peculiar, distinct organization of the cells of the air sacs (alveoli) and air ducts (alveolar ducts) and accompanying in inflammation of the lungs (pneumonia). Individuals with BOOP experience inflammation of the bronchioles and air sacs simultaneously, which distinguishes it from other similar inflammatory lung disorders.

Although several different known causes of BOOP have been identified, most cases occur for no known reason (idiopathic). Idiopathic BOOP may also be called cryptogenic organizing pneumonia. Some researchers prefer the use of COP to avoid confusion with other lung disorders with similar names. The term cryptogenic denotes that the cause of the disorder is unknown. Other researchers prefer the term BOOP because it the most recognized term for the disorder.

Welcome to BOOP

I was diagnosed with BOOP November 2006.  My treatment started in the hospital and is still continuing today.  I want to start this blog to educate my family and friends and to find other fellow Boopers out there!  I've only met one person face to face! I've just started and will post more soon.